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Updates and all that

Once again I've been remiss on updating my journal. But for good reason and I'll go into it a little bit here for those who might have been worried about me.

Well to put it briefly, life sucks. Deb has been into the Emergency room five times in the last few weeks with shortness of breath and chest pains, four of those times by ambulance. Once she nearly died from lack of oxygen and CPR and an epinephrine shot were the only things that saved her. She has had every test known to man done and the best they can come up with is Mitral Valve Prolapse. She is now on medical disability from work. She has no energy and when she exerts herself even a little, she blacks out. Friday I got home to find her extremely low on energy with severe chest pains and fainting. So I rushed her down to the emergency room where we stayed for the next 6 hours until they finally admitted her. She even passed out on the way into the Emergency Room and it was good i had a hand on her at the time and a tech was handy with a wheelchair. She's been in the hospital since Friday night. Her blood pressure was like, dead person low. Something like 80/56 and her electrolytes were all screwed up so they had her on a saline IV all weekend and her BP was finally 122/83 this morning. She's had blood drawn every six hours so now she's really hating needles and it's hard for the nurses to even find a place to draw from in her arms. She may be released today...or not depending in the results of an echocardiogram she had done and we will just have to see from there. Frankly I'm getting a little fed up with doctors as of late though I know they are doing their jobs but each one seems to be taking a shot in the dark and prescribing drugs for what they think it might be and then the next ones takes her off that drug and calls the last guy a quack and puts her on something new.

And I can't do much to treat her if I don't know what is wrong other than to just give her overall healing energy.

We did like her attending physician over the weekend. He seemed to give us some straight answers on things. He was pissed that her regular doctor had not waited for the results of her echocardiogram before prescribing this calcium line blocker he put her on because in addition to being a treatment for MVP, it is also a treatment for High blood pressure. It is meant to bring your blood pressure down and she was already at the low end of the normal scale anyway, and with the sudden weight loss from the allergy medications she was on and asthma medications as well, the cumulative effect was lowering her blood pressure to the point she could barely get off the couch without blacking out and was having several episodes of severe chest pains each day.

So she has not had a chest pain episode since Saturday and has not passed out. Of course she's also had no exercise other than getting out of bed to pee.

I got about 6 hours of sleep all weekend as I was by her side most of the time. At tleast it gave me some time to read but it was big time hurry up and wait which is frustrating to say the least. for part of the time she had a private room because she didn't have another patient for a roommate. I think she rested well then but the first night with the woman on the otehr side of the hall screaming for a bed pan every five minutes (no lie) was a bit stressful. Her roomamte that night was a heart patient as well and quiet as a mouse. Then a full day of no rooomate and then yesterday morning an elderly diabetic woman was brought in who also had a lung infection and was constantly coughing up phlegm in a loud and disgusting manner. That didn't help Deb get any sleep, nor did the woman's very loud relatives who seemd to have no concept that there was another patient in the room trying to get some sleep.

So if she does come home today, I think we may just eat some dinner and go right to sleep and get as much rest as possible. I told Deb to ask the attending physician if he would take her on as a patient instead of the idiot she has now. Hopefully he will say yes and we can finally get some consistent care for her. If it were not for the fact her insurance carrier is not accepted by the local heart care center, we would have gone there all along and probably have been much better off. Oh well, that has not happened so we will just play it by ear and see where to go from here. Hopefully we will get some answers soon on what is going on and we can get on an aggressive course of treatment for her.

So that's why I've not been online as of late.




( 37 comments — Leave a comment )
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Aug. 18th, 2003 10:27 am (UTC)
much love to the both of you. sorry I haven't been in contact-- but we all get busy. I'm moving to a new apartment on the first, so my internet will be down for a bit while I get things reorganized.

be well, and if yer not, get well.
Aug. 18th, 2003 10:32 am (UTC)
Thanks Nik and i understand very well all the stuf you had going on so don't worry. I'll let Deb know your wishes for us. Good luck with the move!

Aug. 18th, 2003 10:35 am (UTC)
I'm so sorry and I hope you get some answers fast, so that you can both take action to speed Deb's recovery.
Aug. 18th, 2003 10:39 am (UTC)
Thanks for thinking of us dear.

Aug. 18th, 2003 10:49 am (UTC)
I'm very sorry to hear that Deb has been so sick - you know, oddly enough last week I was thinking of you guys, noticing your absence, and I felt like something must be wrong. Should've written to check in. Anyhow, I hope y'all can get off the hospital merry-go-round soon and get her home and recovering.
Aug. 18th, 2003 02:27 pm (UTC)
I just brought her home and I came back into work, leaving her with her mom for a bit. Thanks for the kind words. We changed her doctor today. The old one wasn't happy about it but he wasn't doing his job either so he is history. We don't know much more than we did before but at least her energy levels are back up and she can breathe and not be in a lot of pain.

Aug. 18th, 2003 10:51 am (UTC)
Very sorry to hear about your love's illness - I will send healing energies if you will allow it.. HUGZ!! -Mystrys
Aug. 18th, 2003 02:28 pm (UTC)
Re: Comforts..
Of course we will and thanks so much. She is home now and resting quite a bit easier.

Aug. 18th, 2003 10:55 am (UTC)
I really hope you two find an answer soon!! I'm praying :)
Aug. 18th, 2003 02:33 pm (UTC)
Thanks very much it's appreciated.

Aug. 18th, 2003 10:56 am (UTC)
That's absolutely sucktastic. This is the second person I've heard of who's on the "duuuuh, we dunno what wrong with you" ride. Speaking as someone who's been in more hospitals that I care to recall: do not be afraid to go ballistic on the doctors if you think they need it. It is their responsibilty to know what the heck they're doing and who to call if they don't know. Become the squeaky wheel.

I hope things start looking up for you guys. I'd give Deb my remission if I knew how.
Aug. 18th, 2003 02:41 pm (UTC)
Hey thanks a lot. I did come unglued on her "regular" doctor today. We just dumped him an will be seeing the floor physician as her regular one now.

(no subject) - ryl - Aug. 19th, 2003 09:24 pm (UTC) - Expand
Aug. 18th, 2003 11:07 am (UTC)
I'll include you and Deb in my prayers. It's good to hear from you.
Aug. 18th, 2003 02:43 pm (UTC)
You too. She's home. Thanks much.


Aug. 18th, 2003 11:09 am (UTC)
The old adage of bad things happen to good people rears its head once again. *sigh*

I of course echo what everyone else has said, but with an extra reminder: Make sure you take care of yourself as well. You can only give her the strength she will need to make her way back to full health, if you yourself are in good shape.

Good luck.
Aug. 18th, 2003 02:44 pm (UTC)
Yep, thank you for the reminder.



Aug. 18th, 2003 12:21 pm (UTC)
I'm sorry to hear that you and your lady are going through a rough time. Best wishes to both of you, and best of health for your lady.
Aug. 18th, 2003 02:50 pm (UTC)
Thanks, now that she's home, (came home this afternoon) in familiar surroundings, I think we will both be doing better,


Aug. 18th, 2003 02:49 pm (UTC)
I was wondering where your posts went and I hope that things take a turn for the better. I never knew Deb had health problems, but sometimes if you have a positive mindset that helps more than any drugs or stupid doctor's dianoses and treatments =)

My wishes for you and Deb and your respective families! Take Care!
Aug. 18th, 2003 02:54 pm (UTC)
I completely agree. Thanks for the thoughts.


Aug. 18th, 2003 03:24 pm (UTC)
I'm so sorry bro,feel free to call upon my stregnth if you need it. I hope Deb gets better....
Aug. 18th, 2003 03:27 pm (UTC)
She's home and I think things will get better now. Thanks sis.

Aug. 18th, 2003 04:34 pm (UTC)
I'd noticed your absence and am sorry to hear about everything. Those calcium channel blockers sounded scary to me when my doctor first told me about them as a possibility for my high blood pressure. It's pretty bad of the doc to not realize that, apparently they're the "old" method of treatmeant for hypertension.
I'll send you both some healing ki, and you'll be in my thoughts. Best wishes to Deb for a speedy recovery.

Aug. 19th, 2003 07:18 am (UTC)
Thanks dear, i really appreciate that. I'm now learning more than I ever wanted to know about hypertension and MVP and all of that. Deb has to go on a restrictive diet which won't kill me either. I've lost 20 pounds this summer mainly worrying about her so maybe the diet will keep me on the weightloss trend. Now if we can just get some weight back on her, all would be right with the world.

(no subject) - aditu - Aug. 19th, 2003 10:49 am (UTC) - Expand
Aug. 18th, 2003 06:24 pm (UTC)
Oh, dude. Medications can really screw you up... and I hope that is all there is to it, baseline.

Bless ya both, energy coming your way for best possible outcomes. Sometimes that's best anyway, we don't know all the time what we're doing even if we have 'specifics'. You're a good man. Wish we were closer so we could help you out some, even if just moral support and hospital room noise control (I'm pretty brassy about things like that, I'd just show up in my uniform, wave a clipboard at them and tell them to can the yapping, it's a hospital, not a nightclub)

Hugs to you both.
Aug. 19th, 2003 07:25 am (UTC)
hehehe, Thanks Dear, you are great moral support. She had some minor chest pain last night but was much higher in her energy levels than before and no fainting so I take that as improvement. I told she could eat whatever she wanted last night within reason so we had BBQ ribs and corn muffins. Now she just has to get on a regular nutritious diet and cut out some stuff. We went this morning to sign papers so her records could be released from one doc to another that we like a little more. And this weekend I'll begin a regular schedule of energy work for her now that the picture is a little more clear on what is ailing her. Thanks for all the help.

Aug. 18th, 2003 06:36 pm (UTC)
Hey, bear brother!
I'm sorry I have been outta touch, too. Sorry to hear things went from bad to worse for Deb! I hope she's on an ascent now, out of this awfulness.
I've been having to move in my own house, to accommidate my new roommate and all her stuff. It continues. I guess she's staying longer than I thought, as she's unpacking everything. (Me---"Um, we don't need another blender out, really.")...
I'll try checking in tomorrow. :)
Aug. 19th, 2003 07:45 am (UTC)
Thanks love. You know, I kinda got that feeling from her attitude when I met her. That this was now her space ratehr than just borrowing it from you. I'd watch that if I were you and keep it in check otherwise you could find yourself having to get a new house sometime soon. And that would just suck. That room was perfect for you. Maybe you should have suggested up front she move into the basement room instead of moving your stuff there.

Aug. 18th, 2003 07:58 pm (UTC)
Wow! That's rough. I'd be scared shitless if that was Bonnie. Good vibes to you. Hope Deb is kicking you around good real soon;)
Aug. 19th, 2003 07:48 am (UTC)
I hope so too my friend. And it did scare me shitless at first but unfortunately this has become somewhet the norm for us over the past month. Funny what you can get used to isn't it? I'm hoping things are on the upswing now. Thanks for the good vibes.

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